Blog

Bid to help brave Georgia


A family is appealing to restaurants and pubs in a bid to help raise cash towards their battle to keep their young daughter alive. Georgia Paul, aged five, has an aggressive and inoperable brain stem tumour. There is currently no cure for this disease, and the standard treatment is radiotherapy simply to extend the child’s life.

Over the past eight weeks, Georgia has undergone four MRI’s, a brain biopsy and six weeks of radiotherapy. At this time, this is all that conventional medicine can do. Georgia attends Whitchurch Combined School, Buckinghamshire, where Vanessa Dias-Carter is one of the parents aiming to raise awareness of Georgia’s plight. Georgia is a little girl from the reception class.

The latest fundraising plan is to ask restaurants and pubs to take part in a campaign called ‘Sweet Treat For Georgia’. They will carry a dessert by that name for a certain amount of time and donate all or part of the profits to the cause.

Vanessa says: ‘With the help of the community we have achieved our halfway mark but there is still a long way to go to achieve our target. On the 20th of April 2018, Georgia Paul’s parents learned that Georgia had DIPG, an aggressive, inoperable, brain stem tumour, for which there is currently no cure. However, her parents have spent every minute researching this, and there are some treatments available that show some promise.

‘However, there are therapies out there. They’re experimental in nature, but we’ve researched them endlessly and identified the ones that show promise. We feel very strongly that we owe it to our little girl to try them. Her quality of life is forefront of our mind, so we won’t put her through endless treatments if she is clearly deteriorating. But right now, she’s improving, and has such a will to live and a love of life, that we are determined to try and save her. Without trying these treatments, she has just months to live.

‘The first, and perhaps most costly procedure, is she is being fitted with a Convection Enhanced Delivery (CED) system. This is a relatively new technique which allows cancer fighting drugs to pass across the ‘Blood Brain Barrier’, the impenetrable wall that makes treating brain stem cancer so difficult. This procedure is not available on the NHS, and is estimated to cost around £60,000.

‘Once fitted, Georgia can receive transfusions of the chemotherapy drugs that show some promise, as well as using immunotherapy treatments to fight the cancer. These infusions will involve travelling every few weeks to Europe, and are estimated to cost between £6,000 and £20,000 per infusion.

‘Our total estimated costs are in the region of £200,000 to £300,000. We are draining our savings to fund as much as we can, but still have a shortfall. People have been so kind and generous already but if you can spare anything at all to help Georgia, we would be so incredibly grateful.’

Info:

You can read more about Georgia’s story through her blog https://georgia-on-my-mind.blog/2018/07/21/treatments-update/ and donate on her just giving page. https://www.justgiving.com/crowdfunding/teamgeorgia

How to help:

If any restaurant, pub or café would like to take part, please contact Vanessa  via email at [email protected]

 


July 27, 2018